Hello….and welcome to my blog page.
This is my very first post, so it makes sense to introduce myself and sort of “set the scene” for what will hopefully be a useful, helpful and interesting page for those who read it…..and for me too.
My intention for this blog was two fold, firstly to give information to anyone interested about Systemic Scleroderma, a reasonably rare autoimmune disease, one I’ve been diagnosed with for 2 years now. Raising awareness about scleroderma will hopefully lead to increased funding so more research can go ahead hopefully leading to a cure one day. To those reading this who have scleroderma, I’m hoping to share my experience of the disease from the framework of my life here in New Zealand, as a Mum, wife, and (now retired) counsellor/therapist. I know I like to read how others around the world experience scleroderma, and so I’m hoping to add my small input as well. Secondly, I have found my life has changed dramatically since diagnosis, and to be honest, have been struggling to cope at times. You see, I’ve always been a bit of a “shaker and mover”, working hard to achieve goals I set myself, starting new projects and learning new skills, from my professional life as a therapist, to exercising and keeping well, being a full on Mum to three boys right down to managing my housework and running my home. Since becoming sick I’ve lost a great deal physically, mentally and emotionally, with fatigue and pain slowing me right down, so that these days I conduct my life from a recliner chair in the corner of our lounge. The idea of writing a blog seemed appealing and helpful in terms of being able to contribute at least something, and so here we are…..direct from my recliner!
My plan is to write as I can, about anything that happens to be happening, hopefully providing some entertainment, information, a few “deep musings” about the meaning of life, and with any luck, a few laughs! So watch this space, and I hope I can offer something to someone through my posts.
Oh yeah…for those interested here’s a link to some info about Scleroderma: